Webinar Session 1: Introduction to Medicine Development and Research
October 26, 2021
This session includes an overview of how medicines are developed and made available to patients and shares resources that can be used to help people living with breast cancer find clinical trials that may be right for them.
Presentations include:
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06:53 - How Do We Collect Data and Why Is It Important for Breast Cancer Research?
- Dr Elizabeth Comen, Memorial Sloan Kettering Cancer Center
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24:27 - Patient-Centered Clinical Trial Education Program
- Claire Saxton, Cancer Support Community
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37:13 - How Advocates Can Help Patients Learn About Clinical Trials
- Elly Cohen, PhD, BreastCancerTrials.org
- 47:16 - Q&A Session
Webinar Session 2: Focus on Real-World Data
November 16, 2021
This session provides an overview of what real-world data is and how it can be used by physicians and people living with breast cancer to make informed decisions about their care.
Presentations include:
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07:09 - Real-World Data and Evidence: What Is It and Why Is It Being Used?
- Jeremy A Rassen, MS, ScD, Aetion
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26:60 - The Patient Perspective: The Relevance of Real-World Evidence in Patient Decision-Making
- Renate Haidinger, German Breast Cancer Association
- 39:10 - Q&A Session
Webinar Session 3: Infusing the Patient Voice into Research
February 23, 2022
This session features a panel discussion with advocacy leaders that provides an overview and shares best practices on how to infuse the patient voice into breast cancer research.
Presentations include:
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00:15 - Introduction
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06:19 - Panel Discussion
- Renate Haidinger, German Breast Cancer Association
- Marzia Zambon, EUROPA DONNA - The European Breast Cancer Coalition
- Ryan Hohman, Friends of Cancer Research
Webinar Session 2: Focus on Real-World Data
November 16, 2021
This session provides an overview of what real-world data is and how it can be used by physicians and people living with breast cancer to make informed decisions about their care.
Presentations include:
-
07:09 - Real-World Data and Evidence: What Is It and Why Is It Being Used?
- Jeremy A Rassen, MS, ScD, Aetion
-
26:60 - The Patient Perspective: The Relevance of Real-World Evidence in Patient Decision-Making
- Renate Haidinger, German Breast Cancer Association
- 39:10 - Q&A Session
Webinar Session 3: Infusing the Patient Voice into Research
February 23, 2022
This session features a panel discussion with advocacy leaders that provides an overview and shares best practices on how to infuse the patient voice into breast cancer research.
Presentations include:
-
00:15 - Introduction
-
06:19 - Panel Discussion
- Renate Haidinger, German Breast Cancer Association
- Marzia Zambon, EUROPA DONNA - The European Breast Cancer Coalition
- Ryan Hohman, Friends of Cancer Research
Webinar Session 4: Focus on Health Literacy
October 14, 2022
This session includes advocates from around the world sharing programs that were developed to improve health literacy in their respective breast cancer communities. These include an informative video for new patients, tools for deciphering articles on breast cancer research and updates, and programs to increase digital health literacy.
Presentations include:
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05:47 – Information and Navigation for Treatment of Breast Cancer in University of Malaya Medical Centre
- Ranjit Kaur, Past President, Breast Cancer Welfare Association Malaysia
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15:11 – eXaming the Relevance of Articles for You (XRAY)
- Sue Friedman, Executive Director, Facing Our Risk of Cancer Empowered (FORCE)
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26:00 – Patient Empowerment Network – Digital Empowerment
- Reagan LaBor, Partnerships & Program Coordinator, Patient Empowerment Network (PEN)
- 36:02 – Q&A Session
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